Parents who learn their child has hemophilia must find a way to cope with the rollercoast
er emotions that follow the diagnosis and subsequent complications. In Dear Hemophilia, author and mother Cazandra Campos-MacDonald strikes a tender, passionate and often humorous voice in her letters to hemophilia, as if the disorder were a person. Throughout her journey to handle first one son's, and then another's diagnosis, treatment and new way of life, Caz leans on self-discovery, a great medical community, a supportive husband, her resilient children, and most of all, her faith. Travel with Cazandra and share her love, even anger, and above all commitment to God as she boldly confronts a rare bleeding disorder, and eventually finds peace with it in the end. A true gem of a story for all families dealing with bleeding disorders.
--Laureen A. Kelley, author Raising a Child with Hemophilia
Part personal memoir, part educational manual, Dear Hemophilia is an inspiring read. Author Cazandra Campos-MacDonald's honesty about the challenges of being a mom to two sons with hemophilia will leave you wondering where she gets her endurance and determination. If you are a caretaker of anyone with a chronic illness, you will want to understand her experience, so that you can find hope for a journey in which "the unexpected knocks you off your feet." If you want to know about hemophilia, Campos-MacDonald will teach you about the bleeding disorder in all of its aspects - the medical, the emotional, the practical, and the relational. She lets you inside what has left her "scarred and scared," depressed and hopeless; but she will not leave you to feel alone. In her testimony of faith and by her example in the relentless pursuit of information and resources about hemophilia and its treatment, you will find a faithful companion for the road you are walking. Through her voice and experience, she will teach you to trust yourself in advocating for your needs while navigating the world of doctors and hospitals. She shows the reader how community and joy are possible in the face of incredible tribulation and pain. Both heartwarming and heartbreaking, you will learn so much from this fierce mother and her story. -
--Rev. Dr. Julie Todd, John Wesley Iliff Senior Lecturer in Justice and Peace Studies
Cazandra wrote a beautifully heartfelt and honest account of her family's experience with hemophilia. A very inspirational family!
--Brenda Snow, Founder & CEO of Snow Companies