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Ethics of Biomedical Big Data (Hardcover)

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This book presents cutting edge research on the newethical challenges posed by biomedical Big Data technologies and practices.‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasetsto improve medical knowledge and clinical care. The book describes the ethicalproblems posed by aggregation of biomedical datasets and re-use/re-purposing ofdata, in areas such as privacy, consent, professionalism, power relationships, andethical governance of Big Data platforms. Approaches and methods are discussed thatcan be used to address these problems to achieve the appropriate balancebetween the social goods of biomedical Big Data research and the safety andprivacy of individuals. Seventeen original contributions analyse the ethical,social and related policy implications of the analysis and curation ofbiomedical Big Data, written by leading experts in the areas of biomedicalresearch, medical and technology ethics, privacy, governance and dataprotection. The book advances our understanding of the ethical conundrums posedby biomedical Big Data, and shows how practitioners and policy-makers canaddress these issues going forward.

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