product description page
Pioneering Ethics in a Longitudinal Study : The Early Development of the ALSPAC Ethics and Law Committee
About this item
The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as “Children of the 90s,” is an unprecedented birth cohort study that, uniquely, enrolled participants in utero and obtained genetic material from a geographic population. This book describes the early work of the committee, from establishing the core ethical principles necessary to protect participants to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention, disclosure of individual results, data access, and security. The book will be of interest to those involved in other cohort studies who want to understand the evolution of ethical policies as ALSPAC developed.
Number of Pages: 203
Genre: Social Science, Freedom + Security / Law Enforcement
Publisher: Univ of Chicago Pr
Author: Karen Birmingham
Street Date: February 19, 2018
Item Number (DPCI): 248-66-8801
If the item details above aren’t accurate or complete, we want to know about it. Report incorrect product info.